PD research

Review of PD research 2025

Date January 2025

Link click here

Author           

Author: Dr Simon Stott, Cure Parkinsons UK

Content

Content: Youtube video podcast, Research takeaways for 2024 and research should be looking for in 2025. Hosted by No Silver Bullet for PD

Review

Review: excellent review of research undertaken and published in 2024 as well as looking forward to research to be published in 2025.

• Who is this for? all people with Parkinson's and carers
• What is Good? Very clear advice into the current status of medical research,  up to date information as of January 2025
• What is not so Good? Long episode, Lots to take in, you will probably have to listen to it twice

Stem Cell Research

Date: September 2024

Link: Click Here

Author:

Professor Roger Barker, Addenbrookes Cambridge

Content

The history and current status of stem cell therapy is discussed in this podcast published by the Davis Phinney foundation in the USA

Review by Jeremy Collyer

The subject is complicated, and the podcast is long, but there is no better in the world at explaining stem cell treatment than Roger Barker.

• who is this for? All patients with Parkinson's and carers
• what is good? Gold standard explanation of a very complex topic
• What is not so good? There is so much information - you will probably have to listen to it twice - and its not chapterised so finding the right bit may be challenging

Activity Excercise and Physiotherapy

Date: January 2025

Author:

Miriam Boelen, a physical therapist with 29 years of experience treating individuals with Parkinson’s and related movement disorders.

Content

valuable insights and resources on this website and YouTube channel

The website and YouTube channel cover a wide range of topics, including:

• Walking: Strategies for taking larger steps, including attention techniques, auditory cues, and visual cues. Specific videos cover freezing, turning, and gait fixation.
• Transfers: Separate videos provide step-by-step instructions for getting up from various surfaces.
• Caregivers: Practical tips on using a gait belt and safely assisting with transfers, including bed mobility, chair transfers, and floor transfers.
• Balance: Videos discuss the top 10 reasons for balance problems and cover postural instability and orthostatic hypotension.
• Uncommon Postures: Camptocormia and Drop Head Postures are addressed in detail.
• Walkers and Rollators: A dedicated section covers setting up, using, and choosing walkers and rollators.
• Helpful Devices: Mia has observed certain devices that are practical and effective for individuals in physical therapy.

Review

Review in Progress

HEXI - Health Experience Insights

Date November 2025

Link Here is the Parkinson’s section.

Author           

Many people with Parkinson’s and carers. Their stories have been annotated by a panel of health professionals.

Content

Contributors have recorded interviews about their experience with Parkinson’s. The videos have been cut into short snippets and organised into topics under the following sections:

• Overview
• Discovery
• Treatment
• Symptoms
• Living with Parkinson’s

Review

There is a lot of content here, and it rang true in the areas where I have personal experience. I learnt a lot from the contributors different approaches to PD issues.

Excellent overall. I will look at HEXI for other conditions in the future.

• Who is this for? People who want insight into what Parkinson’s means.
• What is Good? It gives an honest picture about what is done well and what is done badly.
• What is not so Good? Some of the videos have poor sound.

Davis Phinney Foundation for Parkinson’s

Date February 2026

Link Here are links to the foundation’s Homepage and You Tube channel.

Content

This is an American charity founded by the former professional cyclist Davis Phinney. It produces resources related to Parkinson’s, as well as funding research.

One area of interest is promoting the benefits of cycling for pwp.

Review

The You Tube videos, that I have watched, are interesting and well produced. Inevitably, some of the content is US centric.